unexpected gifts my journey with my father s dementia

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An Unintended Journey

Author : Janet Yagoda Shagam
ISBN : 9781616147525
Genre : Health & Fitness
File Size : 50. 78 MB
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According to the 2009 census, more than five million people living in the United States have Alzheimer's disease or some other form of dementia. Not reported in these statistics are the fifteen million family caregivers who, in total, contribute seventeen billion hours of unpaid care each year. This book addresses the needs and challenges faced by adult children and other family members who are scrambling to make sense of what is happening to themselves and the loved ones in their care. The author, an experienced medical and science writer known for her ability to clearly explain complex and emotionally sensitive topics, is also a former family caregiver herself. Using both personal narrative and well-researched, expert-verified content, she guides readers through the often-confusing and challenging world of dementia care. She carefully escorts caregivers through the basics of dementia as a brain disorder, its accompanying behaviors, the procedures used to diagnose and stage the disease, and the legal aspects of providing care for an adult who is no longer competent. She also covers topics not usually included in other books on dementia: family dynamics, caregiver burnout, elder abuse, incontinence, finances and paying for care, the challenges same-sex families face, and coping with the eventuality of death and estate management. Each chapter begins with a real-life vignette taken from the author's personal experience and concludes with "Frequently Asked Questions" and "Worksheets" sections. The FAQs tackle specific issues and situations that often make caregiving such a challenge. The worksheets are a tool to help readers organize, evaluate, and self-reflect. A glossary of terms, an appendix, and references for further reading give readers a command of the vocabulary clinicians use and access to valuable resources. From the Trade Paperback edition.

Where The Light Gets In

Author : Kimberly Williams-Paisley
ISBN : 9781101902950
Genre : Biography & Autobiography
File Size : 68. 42 MB
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"Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the Father of the Bride movies, the calculating Peggy Kenter on Nashville, or the wife of country megastar Brad Paisley. But in 2014, Williams-Paisley revealed a ... secret: her mother had been diagnosed with a rare form of dementia called Primary Progressive Aphasia at the age of sixty-one. In [this memoir], Williams-Paisley tells the full story of her mother's illness, from diagnosis through the present-day, drawing on her memories of her relationship with the fascinating, complicated, and successful woman who raised her"--

Keeper

Author : Andrea Gillies
ISBN : 9781907595899
Genre : Biography & Autobiography
File Size : 70. 11 MB
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**WINNER OF THE INAUGURAL WELLCOME PRIZE 2009 ** WINNER OF THE ORWELL PRIZE 2010 Can our personalities be taken away from us? Are we more than just the sum of our memories? What exactly is the soul? Three years ago, Andrea Gillies, a writer and mother of three, took on the care of her mother-in-law Nancy, who was in the middle stages of Alzheimer's disease. This newly extended family moved to a big Victorian house on a headland in the far, far north of Scotland, where the author failed to write a novel and Nancy, her disease accelerated by change, began to move out of the rational world and into dementia's alternative reality. This book is a journal of life in this wild location, in which Gillies tracks Nancy's unravelling grasp on everything that we think of as ordinary, and interweaves her own brilliantly cogent investigations into the way Alzheimer's works. For the family at the centre of this drama, the learning curve was steeper and more interesting than anyone could have imagined.

My Nutty Family

Author : Esther Goldenberg
ISBN : 0692767649
Genre :
File Size : 21. 76 MB
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Norman Yum's family is nutty. His parents are nutty. His big brothers are nutty. His cousin Frank Four is nutty. Even his grandmother is nutty! Norm is the only one in his family who isn't nutty. Or... is he? Read about Norm and his nutty family and decide for yourself. If you're looking for something easy to read but not babyish, this is your book. My Nutty Family captures the attention of the six- to ten-year-old reader and keeps them interested and laughing and turning pages. And with three stories in one place, the reader gets to hold a 100+ page book instead of a 20 page easy reader, boosting confidence and a desire to read.

The Long Goodbye

Author : Patti Davis
ISBN : 9780307801852
Genre : Biography & Autobiography
File Size : 90. 97 MB
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Ronald Reagan’s daughter writes with a moving openness about losing her father to Alzheimer’s disease. The simplicity with which she reveals the intensity, the rush, the flow of her feelings encompasses all the surprises and complexities that ambush us when death gradually, unstoppably invades life. In The Long Goodbye, Patti Davis describes losing her father to Alzheimer’s disease, saying goodbye in stages, helpless against the onslaught of a disease that steals what is most precious–a person’s memory. “Alzheimer’s,” she writes, “snips away at the threads, a slow unraveling, a steady retreat; as a witness all you can do is watch, cry, and whisper a soft stream of goodbyes.” She writes of needing to be reunited at forty-two with her mother (“she had wept as much as I over our long, embittered war”), of regaining what they had spent decades demolishing; a truce was necessary to bring together a splintered family, a few weeks before her father released his letter telling the country and the world of his illness . . . The author delves into her memories to touch her father again, to hear his voice, to keep alive the years she had with him. She writes as if past and present were coming together, of her memories as a child, holding her father’ s hand, and as a young woman whose hand is being given away in marriage by her father . . . of her father teaching her to ride a bicycle, of the moment when he let her go and she went off on her own . . . of his teaching her the difference between a hawk and a buzzard . . . of the family summer vacations at a rented beach house–each of them tan, her father looking like the athlete he was, with a swimmer’s broad shoulders and lean torso. . . . She writes of how her father never resisted solitude, in fact was born for it, of that strange reserve that made people reach for him. . . . She recalls him sitting at his desk, writing, staring out the window . . . and she writes about the toll of the disease itself, the look in her father’s eyes, and her efforts to reel him back to her. Moving . . . honest . . . an illuminating portrait of grief, of a man, a disease, and a woman and her father. With a preface written by the author for the eBook edition.

Final Gifts

Author : Maggie Callanan
ISBN : 9781451677294
Genre : Self-Help
File Size : 78. 17 MB
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In this moving and compassionate classic—now updated with new material from the authors—hospice nurses Maggie Callanan and Patricia Kelley share their intimate experiences with patients at the end of life, drawn from more than twenty years’ experience tending the terminally ill. Through their stories we come to appreciate the near-miraculous ways in which the dying communicate their needs, reveal their feelings, and even choreograph their own final moments; we also discover the gifts—of wisdom, faith, and love—that the dying leave for the living to share. Filled with practical advice on responding to the requests of the dying and helping them prepare emotionally and spiritually for death, Final Gifts shows how we can help the dying person live fully to the very end.

The Theft Of Memory

Author : Jonathan Kozol
ISBN : 9780804140980
Genre : Biography & Autobiography
File Size : 34. 77 MB
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A Library Journal Best Book of 2015 National Book Award winner Jonathan Kozol is best known for his fifty years of work among our nation’s poorest and most vulnerable children. Now, in the most personal book of his career, he tells the story of his father’s life and work as a nationally noted specialist in disorders of the brain and his astonishing ability, at the onset of Alzheimer’s disease, to explain the causes of his sickness and then to narrate, step-by-step, his slow descent into dementia. Dr. Harry Kozol was born in Boston in 1906. Classically trained at Harvard and Johns Hopkins, he was an unusually intuitive clinician with a special gift for diagnosing interwoven elements of neurological and psychiatric illnesses in highly complicated and creative people. “One of the most intense relationships of his career,” his son recalls, “was with Eugene O’Neill, who moved to Boston in the last years of his life so my father could examine him and talk with him almost every day.” At a later stage in his career, he evaluated criminal defendants including Patricia Hearst and the Boston Strangler, Albert H. DeSalvo, who described to him in detail what was going through his mind while he was killing thirteen women. But The Theft of Memory is not primarily about a doctor’s public life. The heart of the book lies in the bond between a father and his son and the ways that bond intensified even as Harry’s verbal skills and cogency progressively abandoned him. “Somehow,” the author says, “all those hours that we spent trying to fathom something that he wanted to express, or summon up a vivid piece of seemingly lost memory that still brought a smile to his eyes, left me with a deeper sense of intimate connection with my father than I’d ever felt before.” Lyrical and stirring, The Theft of Memory is at once a tender tribute to a father from his son and a richly colored portrait of a devoted doctor who lived more than a century. From the Hardcover edition.

A Path Revealed

Author : Carlen Maddux
ISBN : 9781612618760
Genre : Religion
File Size : 29. 69 MB
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Just days after turning fifty, Martha Maddux, a spirited mother and civic activist, was told she had Alzheimer’s disease. She and husband Carlen felt as though they’d been shoved out of a plane 10,000 feet up, with nothing to grab but themselves. A Path Revealed is not about the fallout from an insidious disease that extended over seventeen years. It is the story of a path of hope emerging during the darkest hours - a path that lifted Carlen and Martha above the devastating symptoms of this disease. Carlen traveled with Martha to the backwoods of Kentucky, where the quiet presence of a Catholic nun revealed a hidden path. He was forced to slow down as he traced this path halfway around the world to Australia, retreated weekends to a monastery, embraced meditation, and landed all alone in Thomas Merton’s cabin. This story conveys a message of hope and joy in the midst of an almost overwhelming tragedy.

Being My Mom S Mom

Author : Loretta Anne Woodward Veney
ISBN : 074148210X
Genre : Family & Relationships
File Size : 47. 66 MB
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"Being My Mom's Mom" invites readers on my personal journey before and after the onset of my Mom's dementia. Personal vignettes highlight the heartache and humor in this life-changing disease. I offer strategies from real experience for building the best care team for loved ones, increasing one's capacity for patience, and making the most of every day. I confirm the difficulty of acknowledging when it's time to become the "parent of a parent." I also offer hope that loving relationships with dementia sufferers can continue, even in the realization that the past is forgotten, and the future is the present.

Where Memories Go

Author : Sally Magnusson
ISBN : 9781444751802
Genre : Biography & Autobiography
File Size : 21. 53 MB
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Scottish broadcaster and author Sally Magnusson's bestselling memoir of caring (with her two sisters) for their mother Mamie during many years of living with dementia. Sad and funny, wise and honest, this deeply intimate account of insidious losses and unexpected joys is also a call to arms that challenges us all to think differently about how we cope with a disease like dementia and care for our loved ones. This book began as an attempt to hold on to my witty, storytelling mother with the one thing I had to hand. Words. Then, as the enormity of the social crisis my family was part of began to dawn, I wrote with the thought that other forgotten lives might be nudged into the light along with hers. Dementia is one of the greatest social, medical, economic, scientific, philosophical and moral challenges of our times. I am a reporter. It became the biggest story of my life. - Sally Magnusson Regarded as one of the finest journalists of her generation, Mamie Baird Magnusson's whole life was a celebration of words - words that she fought to retain in the grip of a disease which is fast becoming the scourge of the 21st century. Married to writer and broadcaster Magnus Magnusson, they had five children of whom Sally is the eldest. As well as chronicling the anguish, the frustrations and the unexpected laughs and joys that she and her sisters experienced while accompanying their beloved mother on the long dementia road for eight years until her death in 2012, Sally Magnusson seeks understanding from a range of experts and asks penetrating questions about how we treat older people, how we can face one of the greatest social, medical, economic and moral challenges of our times, and what it means to be human. An extraordinary and deeply personal memoir, a manifesto and a call to arms, in one searingly beautiful narrative. Facebook.com/WhereMemoriesGo

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